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Tagged: crowd sourcing

Sharing Data to Improve Patient-Focused Outcomes

April 26, 2022

Critical Path Institute’s Dr. Diane Stephenson joins host Alaina Webster to discuss the importance of data sharing to improve patient care, particularly in Neuroscience. Diane and her co-authors recently published a Review, “Can Innovative Trial Designs in Orphan Diseases Drive Advancement of Treatments for Common Neurological Diseases?”, in the April Neuroscience-themed issue of Clinical Pharmacology & Therapeutics, and she ties this work into successful data sharing models and their impact on patient outcomes. Critical Path Institute has accumulated more than 300 clinical data studies across 15+ disease areas, and its repository of data currently includes information on the following neuroscience diseases: Alzheimer’s disease, Huntington’s disease, ataxias, Duchenne muscular dystrophy, Parkinson’s disease, and multiple sclerosis.

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Sharing Data to Improve Patient-Focused Outcomes
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Download file | Play in new window | Duration: 14:50 | Recorded on April 25, 2022

Tagged With: ASCPT, Best Practices, citizen science, clinical trial design, CPT, crowd sourcing, data sharing, Database, Neuroscience, Parkinson's disease, patient advocacy, rare diseasesChannel: ClinPharmPod

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